United StatesProgeria Research Foundation is the #36,116 most-subscribed YouTube channel worldwide and #9,300 in United States, with 23.8K subscribers and 11.3M total views across 145 videos.
Biography
The Progeria Research Foundation (PRF) is a non-profit organization dedicated to developing treatments and, ultimately, a cure for progeria, a congenital disorder. The Foundation was established in 1999 by the family and friends of Sam Berns, a child with progeria, including Dr. Leslie Gordon and Dr. Scott Berns, his parents, and Audrey Gordon, his aunt.
Channel description
The Progeria Research Foundation (PRF) is the driving force behind the global effort to understand, treat and ultimately cure children & young adults with Hutchinson-Gilford Progeria Syndrome (Progeria), a rare & fatal genetic disease that causes rapid aging in children. Founded by the family of Sam Berns after his diagnosis in 1999, PRF has enabled or led major scientific breakthroughs in the field; from discovery of the causative gene mutation, to Progeria’s first and only FDA-approved treatment, lonafarnib, to the advancement of gene-editing approaches now in development. Through rigorous science, global research infrastructure and close partnership with the worldwide patient community, PRF is advancing next-generation therapies & leading the Path to Cure Progeria program to determine whether a one-time gene-editing therapy can offer a durable, potentially curative treatment.
For more information and to support PRF’s mission, please visit www.progeriaresearch.org.
Latest videos Channel ↗
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PRF | 24th ANNUAL International RACE FOR RESEARCH video highlights
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PRF | Workshop 2025 Opening Night Patient Panel
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PRF | Bethany Hudson Interview about running the 2026 Boston Marathon
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PRF | HAPPY NEW YEAR 2026
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PRF | Sammy Basso (1995–2024) shares his inspiring thoughts and dreams.
Frequently asked
- How many subscribers does The Progeria Research Foundation have?
- 23.8K subscribers — #36,116 worldwide, #9,300 in United States.
- What is The Progeria Research Foundation's real name?
- The Progeria Research Foundation's real name is Progeria Research Foundation.
- When did The Progeria Research Foundation start on YouTube?
- The channel was created in Jan 2009.